Methods 29 hemophilia children and their parents were investigated by self designed questionnaire which included characteristic,home care status,FISH score(Functional Independence Score in Hemophilia) and so on.

• 方法对广州市血友病治疗中心登记在册的29例广州地区血友病患儿及其父母进行问卷调查,主要内容为患儿一般情况、2006年家庭治疗与护理现状及FISH评分(Functional Independence Score in Hemophilia)。