But as he grew, the condition became so aggressive and severe that he developed a rare large tumor called a plexiform neurofibroma, visible from the back of his shoulder and collarbone.

• 当他长大后，病情变得发展更快,更严重，并形成一个罕见的名叫丛状纤维神经瘤的大肿瘤，这个大肿瘤可以从他的肩膀和锁骨后面看到。